Volume 2, Issue 1
January 2002
Page 4
TRANSFORMATION PROJECT! DESIGNING A SYSTEM FOR US -- WITHOUT US  
Features
Links to newsletter stories:
1. Change, helping each other & unity in the days ahead.

2. Waiting List numbers--We have work to do.

3. Serious issues affecting the Waiting List.

4. Transformation Project! Designing a System for us --Without Us.

5. ALERT!!!!  Your Individual Budget -- Currently called Individual Estimated Resources (IER) -- A Must Read

6. Action Needed NOW
 

 


4540 Best Station Road
Slatington, PA 18080
Telephone: 610-767-2437
Toll Free:1-877-372-WAIT
Email:sstasko@msn.com

One of the major areas of change is the need for the Office of Mental Retardation to develop a business model that will improve their effectiveness and efficiency.  Who are the people, what do people want and have, who's waiting and how much funding is being used and available?  What is being developed instead is another layer of bureaucracy.

The Provider Invitation to Qualify, the Provider Monitoring Process, Incident Management, Supports Coordination, and HCSIS Services and Supports Directory are among many other processes undergoing system design and implementation.  However, only a handful of consumers and family members were involved in the process that is making major decisions for systems change. 

The Transformation presentations that have been given show a system already developed and set in stone.  Further, no one acts on the input or suggestions from people and family members.  Counties already have Transformation Manager's in place.  Supports Coordination (formerly called Case Management) is undergoing significant change and the people changing it are the state. Consumers and families will have an even more difficult time with the Individual Estimated Resources (IER) process.  (See article, next page). 

It appears that the system is intentionally confounding people by using such preposterous and rapidly changing jargon that nothing is concrete.  Get information and ask questions.  Visit the OMR Transformation web page at: www.dpw.state.pa.us/omr/dpwmr.asp

ALERT!!! YOUR INDIVIDUAL BUDGET -- CURRENTLY CALLED INDIVIDUAL ESTIMATED RESOURCES (IER) -- A MUST READ
The greatest Transformation challenge facing people and families today is the proposed IER, which is a budget for funding that will be allotted for your services and supports.  The proposed system is in the process of developing a  needs assessment that will then determine the amount of funding you will have available BEFORE YOUR SERVICE PLAN IS DEVELOPED.

The IER appears to be focused and directed at people living at home.  As a consumer or family member this can potentially take away your right to disagree with the county on what  funding is being offered unless you are willing to spend the time to go through an appeal process.  The information from your initial intake will be put in a central computer and will fit a profile of other people who have similar disabilities; that will drive funding for your budget.  Budgets will become capped, with all similar disabilities costing the same amount.  The budget will be driven by cost rather then need and flies in the face of Self Determination. 

Funding for services has always been in short supply.  An additional concern is that costs have always been held low and that the target funding estimated for people will be inadequate to fully fund what a person needs.  We are in constant contact with people and families who tell us they are being told what they are allowed for funding before they have begun planning.  The Person and Family Directed Support Waiver is capped at $21,125 and will be the initial target for the IER. 

People and families have barely begun to get adequate funding and now the state is trying to limit that amount even more.  In two years the Consolidated Waiver will use the IER process and that funding will also be capped and have limits. If you are concerned with the possibility of a capped Individual Budget that falls short of meeting your needs, then you are encouraged to contact the PA Office of Mental Retardation, Department of Public Welfare and legislators to let them know how you feel before the IER becomes a destructive part of the system.

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