Greater Philadelphia Chapter of the Autism Society of America
This site provides information on Autism including conferences, articles, events, links to other sites, and information on membership in the Autism Society.

AsthmaMoms
Families helping families manage asthma. This is a nice, informative site with information about symptoms, solutions, resources, product evaluations, events and more.

Down Syndrome Health Issues
Compiled by physician and father Dr. Len Leshin,  www.ds-health.com contains health articles written by Dr. Leshin and other medical professionals, discussions of current Down syndrome controversies, and an up-to-date, thorough list of Web links.

The following resources are taken from Resource Guide for Parents with Children with Disabilities developed by:

Mayor’s Commission on People with Disabilities
1401 JFK Boulevard, Room 900
Philadelphia, PA       19102-1660

Epilepsy Foundation of Southeastern Pennsylvania
The Epilepsy Foundation of Southeastern Pennsylvania is a non-profit, voluntary health organization that provides education, support and advocacy for people with epilepsy and their families.  The Foundation also promotes understanding of seizure disorders through a wide variety of programs presented to business, government and school communities, professional audiences and the general public. Contact them for infomation on adult issues such as transportation, housing, medical, employment, legal issues and more. The Foundation also provides family support services and community education. The Epilepsy Foundation can be contacted at:

Seven Benjamin Franklin Parkway, 6th Floor
Philadlephia, PA   19103-1208
Phone:   800-887-7165 (in PA)
FAX:       215-523-9190
               215-523-9180

Muscular Dystrophy Association of Southeastern PA and Southern NJ
The Muscular Dystrophy Association is THE source for news and information about neuromuscular diseases, MDA research and services for adults and children with neuromuscular diseases and their families. MDA provides funding sources for assistive technology to those with neuromuscular disease. The MDA can be contacted at:

455 Business Center Drive, Suite 155
Horsham, PA    19044
Phone:   215-682-9720       FAX:  215-682-9655
Email:     rickworrell@mdausa.com

The Noonan Syndrome Support Group, Inc., provides positive, accurate information about Noonan syndrome and members share experiences and exchange ideas on how to cope. They have a quarterly newsletter and website at www.noonansyndrome.org Contact founder Wanda Robinson at wandar@bellatlantic.net or toll-free 888-686-2224.

Office for the Deaf & Hard of Hearing
Provides information, referral and advocacy to adults and children who are deaf or hard of hearing, their relatives, friends, and others.  This office advocates for people with hearing loss who are not receiving proper services from government or private agencies.  The office also distributes information and answers questions and refers people to appropriate organizations. Stands ready to serve as liaison, to open doors, explain procedures and make referrals. They may be contacted at:

909 Green St.
Harrisburg, PA   17102
Voice/TTY in PA      800-233-3008
Voice/TTY              717-783-4912
FAX                        717-783-4913

PA Deaf-Blind Project
A four year federal grant (1999-2003) know as the Pennsylvania Deafblind Project, serves families, educators and service providers of children from birth through age 21 who have combined vision and hearing impairments in PA. The mission of  Hand in Hand is to build capacity to ensure success for all infants, young children, students and youth who are deafblind, or at risk for deafblindness, in the context of local schools and communities. They may be contacted at:

6340 Flank Drive, Suite 600
Harrisburg, PA   17112-2793
Phone: PA only      800-360-4960   717-541-4690
FAX:                     717-541-4698

Pennsylvania Tourette Syndrome Association
Voluntary non-profit organization develops and disseminates educational materials to individuals, professionals and to agencies, coordinates support services to help people and their families cope with the problems that occur with TS; fund research that will ultimately find the cause of and cure for TS and lead to improved medications and treatments. They may be contacted at:

132 West Middle St.
Gettysburg, PA 17325
Phone:   PA only     800-990-3300
             Other         717-337-1134
FAX:                      717-337-1960