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Family Forum Odds and Ends |
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| 1. Riding the Bus with My Sister 2. Are We Being Heard? 3. Mailbag 4. Movie Reviews 5. Did You Know? 6. Death Penalty 7. Prisoners
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Riding the Bus with My Sister
is a book about the author, Rachael Simon’s,
relationship with her sister, Beth, who has mental retardation. Beth spends
her days riding the buses in the PA city where she lives, befriending
drivers and passengers and being a very visible member of the everyday
world. Rachel rode with her for a year, and the book is a chronicle of that
time and how it changed their lives. Rachel also describes their entire
history as sisters and covers many issues, including discrimination,
self-determination, the concerns of siblings, and the role of friends.
Rachel reports that Rosie O’Donnell has optioned movie rights! The book is
published by Houghton Mifflin and is available at large bookstores. See
the calendar for local bookstore readings by Rachel on September 25 and
October 24. For more information, visit Rachel’s website,
www.rachelsimon.com Her email
is rsimon@voicenet.com
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| Are We Being Heard? On behalf of the National Governors Association, Governor Howard Dean testified before the Senate Special Committee on Aging on 6/20/02. He stated, "Nursing home care is an entitlement under the Medicaid Program while people who would prefer to be on the Home and Community Based Waiver program must wait, often for a long period of time, on waiting lists. There is something very wrong with this picture. This calls for a complete paradigm shift. We need to treat nursing homes and other institutional care as the last option, after all other options have been tried and failed. Experience has shown that we can serve many more people with the same funding, and serve them in the setting they prefer, when we are able to keep them at home and avoid institutional costs. Perhaps more importantly, we can provide a higher quality of life . . . Consumers are demanding more alternatives and rejecting institutional care. All we have to do is listen to them and follow their lead. If we do, we will have a better system of care and one, which provides for more people for the same dollars …"
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| Mailbag - Hello Family Forum Wanted to share my son Gabriel's experience with you. Gabriel has been attending summer camp at the Carousel House for over seven years. It has been an enjoyable experience for him. The Carousel House is a Special Populations recreational and educational facility sponsored by the City of Philadelphia Recreation Department. The facility has three summer camp sessions beginning in July. They also have a summer sports camp. For as long as I can remember Gabriel has had fond things to say about the camp. The participants go on trips at least twice a week to various places of interest, and they also provide transportation to and from the camp. I as a parent have grown to love the facility, not only for the services
they provide, but for the caring, considerate staff they have. I feel
comfortable in letting my child attend camp, knowing tht he will be cared
for by such a wonderful staff they have on board. Check it out.
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| Let’s Get Reel from Mark Bernstein’s June News and Views Well, summer 2002 is officially under way, which means the start of the blockbuster movie season when millions of Americans plunk down their hard earned dollars to sit in a darkened movie theater and watch someone else’s vision of life, which, by the way, usually doesn’t include sitting in a darkened movie theater. But to commemorate this wonderful season, we proudly present our first (and probably last) annual DITVAM (Disabilities in TV and Movies) awards or, as we like to call them, the Dittys. Best portrayal of a person with obsessive-compulsive disorder: Jack Nicholson, As Good as it Gets (1997). Pure genius without once stepping on the cracks. Best portrayal of a person with autism: Leonardo DiCaprio, What’s Eating Gilbert Grape (1993). What? You were thinking Dustin Hoffman??? Most improbable story involving a person with a disability: Charly (1968) with Cliff Robertson taking a drug that turns him into a genius. Alas, the drug wears off and he turns back into a pumpkin (oops, wrong story.) Grittiest portrayal of a person with a cognitive disability: Billy Bob Thornton, Sling Blade (1996). Featuring John Ritter in the best performance of his career. Worst title of a movie that includes people with disabilities: The Idiots (1998). A film from Denmark about a group of ordinary citizens who decide to become people with learning disabilities in reaction to the ills of society. Don’t ask. Most inspirational movie involving an individual with a disability who teams up with a fellow outcast to achieve personal glory and/or salvation and/or redemption: Tie between The Mighty (1997) with Jillian Anderson (sigh) and Simon Birch (1998) with Ashley Judd (double sigh). If I didn’t see them side-by-side in Blockbuster, I’d swear they were the same movie. First movie to portray a person with a disability: The Fake Beggar, (1898) a 50 second film by none other than Thomas Edison in which a man pretends to be blind in order to beg for money on the street. The jig is up when a policeman spots him bending over to pick up a coin. Policeman gives chase. End of movie. Most embarrassing moment in a movie involving a person with a disability: When Giovanni Rabisi appears dressed as a giant dog in The Other Sister, (1999). Most insulting and degrading performance of a person with a disability: Nathan Lane, The Boys Next Door, (1996). Looking like a deranged Jackie Gleason, Lane prances around promoting every negative stereotype about people with cognitive disabilities. Amazingly, he won an Emmy for Outstanding Individual Achievement for this disgusting performance. Congratulations to all our winners. From Mark Bernstein’s News and Views, also comes a recommendation of a made-for-TV movie that debuted on the TNT network this July, and will probably be rebroadcast. It’s called "Door-to-Door" and stars William Macy as a salesman with cerebral palsy who fashions a successful career for himself despite some rather daunting obstacles. Mark says the movie is wonderfully understated in its handling of the subject matter and allows us to clearly see the man rather than the disability. Keep a lookout for it.
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| DID You Know? Older Women’s Support – The Supportive Older Women’s Network (SOWN), a non-profit agency, based in the Greater Philadelphia area, helps women over the age of sixty cope with the complex issues associated with aging. As a leading provider of support group services for older women, it offers communities and social service providers extensive expertise in establishing and maintaining support groups. SOWN also offers consultation services, training programs and workshops tailored to address specific concerns of older women, their families and the professionals who serve them. Currently, SOWN is offering and developing Support Groups for Seniors, both men and women, over 60 who are raising children 18 and under. Current sites are Spring Garden Senior Center, 1221 Spring Garden Street, on Mondays at 10 a.m., and South Philadelphia Senior Center, 1430 E. Passyunk Avenue, on Wednesdays at 10:15 a.m. Groups will be developed in other parts of the city, as well as phone groups for seniors who find it difficult to leave their homes for meetings. Groups will provide support as well as sharing of information and resources. Contact Carolyn Schneider at SOWN, 215-477-6000, or email schneider@sown.org (www.sown.org) with questions and referrals. Stories for Children – is a monthly television program on the School District of Philadelphia Network (SDPN). to introduce children in grades 1-6 to stories, storytellers, authors, poets, and illustrators. Telecast live on Channel 52 (8) once each month on Tuesday from 10:30 to 11 a.m., they are repeated on tape the same day at 5 p.m. and 8:30 p.m. and several other times during the month. Braille Users – Classes at Liberty Resources are designed to teach consumers independent living skills using Braille. Receive individualized one-on-one instruction to learn how to label cans, bottles, cassettes and other everyday items in Braille, even create a Braille address/telephone book. Classes are held on Mondays and Wednesdays from 10 a.m. to 12 p.m., in twelve-week sessions. To register or for further information, please contact Cecilia Ramnathsingh at 215-634-2000 ext. 240. Utility Shut-Off Help – Customers who have not settled their outstanding bills with PGW can call 215-235-1777 to find out about payment plans and other options. Also the Philadelphia residents can apply for up to $750 from the Utility Emergency Services Fund (USEF) for electric, gas, or water shut-off or shut-off status. Income eligibility has increased; for example a family of two can earn $20,318; a family of four, $30,888. The main phone number for UESF is 215-829-0545. Hours: 9am-5pm. They will answer any questions you may have, including questions about intake sites. Accessible City Services – The City of Philadelphia’s website lists accessible city services, such as the Airport, Art Museum, health centers, libraries, parking garages, police facilities, pools, recreation centers, and shelters. Go to www.phila.gov/aco/facilities.html Fun on the Web – Two nifty websites for games: www.funbrain.com and www.factmonster.com
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| No Executions for Murderers with Mental
Retardation The Supreme Court recently declared that murderers with mental retardation can’t be executed for their crimes because the death penalty would be "unconstitutionally cruel." Justice John Paul Sevens wrote, "Because of their disabilities in areas of reasoning, judgment, and control of their impulses, however, they do not act with the level of moral culpability that characterizes the most serious adult criminal conduct." Offenders with mental retardation would still be tried and punished when convicted of their crimes, however.
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| Vitamins?
In a rotten mood? Chew somebody out? Don’t blame it on the Devil – maybe you forgot to take your multivitamin. A report on a study of prisoners in the July issue of the British Journal of Psychiatry says that there were 35% fewer "antisocial antics – ranging from violent assaults to swearing at the guards" when the inmates were taking micronutrient supplements for a two-week period. Scientists aren’t sure how such tiny doses of nutrients can make such a difference in behavior. However, the report states that there is growing evidence that fatty acids, such as omega-3, can lighten depression and reduce irritability in adults. If someone you care for might benefit from this news, check with his or her doctor. A little fishing for fish oil might make a difference.
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The End Return to www.MyCityMyPlace.com
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