The FAMILY FORUM
May/June 2002

  Page 3 Volume 13, Issue 3
Table of contents

1. Finding Resources

2. Computer Guru

3. Wheelchair clinics

4. Extended School Year?

5. Did you know?

6. Camps 2002

7. Transformation Awards and Photos

8. Calendar
 

Past Issues

March/April

Sept/October 2001

 

 

 


Wheelchair Clinics

Tired of hassles with wheelchairs? Have you considered a wheelchair clinic? Wheelchair clinics were created to provide one location where wheelchair repairs, adaptations, or new wheelchairs could be ordered.

The clinics provide an occupational therapist (OT), or a physical therapist (PT), for an evaluation and recommendation. They often provide a choice between several wheelchair vendors, otherwise known as durable medical equipment (DME) providers. They also help to obtain insurance
authorization through Medicare, Medical Assistance, and/or private insurance.

Listed below are SOME of the wheelchair clinics in the Philadelphia area. Call them for an appointment, and they will tell you what prescriptions are needed and what insurance they accept.

Bryn Mawr Rehab Hospital (610) 640- 3943, (outpatient intake) (610) 640- 7895

Chestnut Hill Hospital (215) 233- 6240

Hospital of the University of PA (215) 349- 5585

Magee Hospital (215) 587- 3032

Moss Rehab Hospital (215) 456- 9475

Pennsylvania Hospital (215) 829- 7923

When you visit the clinic for an evaluation, be prepared to provide complete medical information, insurance information, and past wheelchair information. Remember to:

1) Get documentation of the clinic visit.
2) Make sure any loaner wheelchairs are equivalent to the individuals present wheelchair. 
3) Remember to ask how long the process of repairs,
adaptations, or the new wheelchair order will take to complete.
4) Be prepared to be a persistent advocate. (Source: Health Care Alert, Issue #13, PCHC Newsletter)
 


Are You Up-to-Date on Extended School Year Programs?
By Janet Stotland, Education Law Center - PA

Last year, under pressure from the Education Law Center and the federal Office of Special Education Programs, the State's Extended School Year (ESY) regulations were substantially amended. Some of the most important changes/clarifications were that: ESY is not limited to children with "severe" disabilities (although these children are most likely to qualify).

A child can qualify because of a "regression/recoupment" problem, or because of "other factors" that make it unlikely that the student "will attain or maintain skills and behavior relevant to established IEP goals and objectives." "Retrospective data" (that is, documented past history) on regression and recoupment are not required for a child to qualify. Other evidence that can be relied upon in making ESY determinations includes reports by parents of negative changes, or observations and opinions by educators, parents and others.

Last summer, we received a number of complaints – late ESY eligibility determinations, districts that failed to develop individualized ESY, IEPs, and others. For the past several months, we have been working with the PA Department of Education to develop a Basic Education Circular (BEC) that would prevent some of these problems, and eliminate some widely held misconceptions about ESY programs. That BEC has just been issued, and ELC will send copies on request. ELC also has a new "Fact Sheet" on ESY programming.

Some of the "highlights" of the BEC are: All children with disabilities must be considered for ESY eligibility at their annual IEP meetings, not just children with severe disabilities; IEP team reviews for ESY eligibility for children with severe emotional disturbances, autism, moderate and severe levels of retardation or multiple disabilities must be completed by February 28 of each school year, and the Notice of Recommended Assignment (NORA) issued to parents (with program specifics if eligible) no later than March 31. Since this BEC is just being issued in early February, some districts may legitimately have difficulty convening these IEP meeting by the end of the month. This BEC should, at least, give families substantial leverage in getting the meetings scheduled ASAP.

Whenever a family asks that a child be considered for ESY eligibility, an IEP team meeting must be convened, and the decision conveyed to the parents via a NORA. Negative decisions can be challenged through the procedural safeguard system. ESY programs are not limited to self- help and basic skills. Academic and vocational goals can also be part of an ESY program. Although most ESY programs are designed to make up for the long summer break, ESY programs can include weekends or even continuous programming. A child's ESY program cannot be changed over the parents' objection and request for a hearing until all due process procedures have been completed. If fully understood and implemented, these new regulations, and the new BEC, will be a big help to families trying to get ESY services for their children.

For more information, or for the fact sheet, contact the Education Law Center-PA at 215-238-6970 or email elc@elc-pa.org


Did You Know?

Dental Care – Special Smiles, LTD, is a state of the art dental facility specializing in the treatment of patients with emotional, behavioral, cognitive, and developmental disabilities. Located in Episcopal Hospital at Front Street and Lehigh Avenue, their goal is to provide dental care solutions for persons with special needs. Special needs patients are those individuals with disabilities whose routine dental care services may not be provided by a general dentist due to resistance to treatment in a traditional dental office setting. Patients must be at least 14 years old and currently enrolled in one of the following HealthChoices programs: AmeriChoice, HealthPartners, or Keystone Mercy Health Plan. Contact the Member Services Department to obtain a referral for dental treatment, or call Special Smiles directly at 215-427-7495.

Social Security – People who get benefits can earn more in 2002. There's good news in 2002 if you're younger than 65 and you work while getting Social Security survivors or retirement benefits. You'll be able to earn more money this year and keep all of your benefits. You can earn up to $11,280 (up from $10,680 in 2001). After you earn $11,280, $1 is withheld from your benefits for every $2 you earn. If you will reach age 65 during 2002, $1 will be withheld for every $3 of earnings above $30,000 until your birthday month. After your 65th birthday, you can receive your full benefit amount no matter how much you earn. There are a variety of ways to contact Social Security. Call 800-772-1213. You can use the automated phone services 24/7, or call between 7 a.m. and 7 p.m. on business days to speak with a representative. If you're deaf or hard of hearing, call the TTY number, 800-325-0778, 7 a.m. to 7 p.m. Or you can use the FAX Catalog. Call toll-free, 888-475-7000, for an index and to order specific items. You can write or visit your local Social Security office. And, of course, there's the website – http://www.ssa.gov/reach.htm.

Legal Help for Seniors – The Judicare Project provides free legal services and advocacy to low-income seniors, aged 60 or older, who are homebound or disabled. They encourage contact from Asian, Latino, and other seniors with limited English. Call 215-238-6390 or www.scjudicare.org.

Vehicle Modification Contacts – Here are some telephone numbers for vehicle modification – Chrysler, 800-255-9877; General Motors, 800-323-9935; Ford, 800-952-2248; Saturn, 800-553-6000 (press 3). Compensation for new vehicles’ modifications are sometimes available from individual manufacturers based on certain restrictions. It’s worth a call if you’re buying a new van.

Right to Education Guide – The 2002 edition of "The Right to Special Education in Pennsylvania – A Guide for Parents" is available from the Education Law Center. Single copies for parents and advocates are free. Others may purchase copies at $7.50 each or arrange for bulk order discounts. Call 215-238-6970 or email elc@elc-pa.org

PACENET Eligibility Expanded

Pennsylvanias seniors PACENET drug prescription eligibility has been expanded by $1,000. If you lost your PACENET eligibility due to the cost-of-living Social Security increase, contact your County Assistance Office. You will be enrolled retroactively, and no one will be removed this year due to a COLA. If your income was just a bit too high previously, you also should contact the Assistance Office. Due to the income increase, you could be eligible.

Technology help

If you are a person with a disability who currently uses technology to be more independent (electronic organizers, palm pilots, personal digital assistants), Temples Institute on Disabilities wants to hear from you for their research project. For more information, call 215-204-2247, TTY-215-204-1356, or email friedman@voicenet.com  Visit www.temple.edu/inst_disabilities

The Nurturing Parenting Program

Helping to handle stress and anger – for parents and adolescents, 12-19 years of age

The Nurturing Parenting Program -- for parents and adolescents 12 to 19 years old – is a free ten-week program for families to take together. Parents meet separately from children with two trained facilitators while youth participate in self-esteem building activities with their own facilitator. The program is for any family that wants to get along better, communicate more, and feel closer to each other.
A new class begins on March 30th and will run through to June 1, 2002, at Parkside Recovery, 5000 Parkside Avenue, Philadelphia, PA 19131. Sessions are held on Saturday from 11:30 a.m. to 2 p.m. A free catered lunch is provided. Van transportation is provided to families who live in West Philadelphia and around Center City. Tokens are distributed to those who live elsewhere. For registration or information call Dr. Nancy Lydick, 215-879-6116, ext. 227

The program works for all kinds of families: two-parent, single-parent, foster, adoptive and blended families. In addition to the program for parents of adolescents, there are programs designed for parents and their infants/toddlers and parents and their school-aged children. These groups will meet at a later date.

This program is designed to help adults and children learn how to handle their feelings, communicate their needs and feelings of others, and take charge of their own behavior; replace hitting and yelling as disciplinary techniques with other, more effective techniques such as redirection, time-out, choices and consequences, praise, family rule, problem solving, etc.


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